Association addressing the rare disease "Prader Willi Syndrome" in Romania

Akronym: RPWA

•     to facilitate access to information about rare diseases;
•     to create a national data base on rare diseases;
•     to create a support network between patients affected by the same disease;
•     to create a support network between specialists and families;
•     to stimulate research in the field of managing rare diseases;
•     to collaborate with international organizations and networks;
•     to stimulate early diagnosis;
•     to prevent and manage disability at different levels

Webseite: http://www.apwromania.ro/

Adresse:
Zalău
Romania

Projekte:

• INNOV-CARE - Innovative patient-centred approach for social care provision to complex conditions